Pengalaman Keluarga Etnis Tionghoa dalam Memberikan Perawatan Paliatif Pasien Kanker di Rumah

Chinese Ethnic Families' Experiences In Providing Palliative Care For Cancer Patients At Home

Abstract

Palliative care for terminal cancer patients often faces challenges related to culture and family values, especially in ethnic Chinese communities. Families are the most involved in patient care, yet cultural factors and traditional values influence how they make end-of-life care decisions. The purpose of this study was to explore the experiences of ethnic Chinese families in Medan in providing palliative care to terminal cancer patients at home. This study used a phenomenological approach to explore the experiences of ethnic Chinese families in Medan in caring for terminal cancer patients at home. In-depth interviews were conducted with eight purposively selected participants. The data collected were analysed using the Colaizzi technique to identify key themes in the families' experiences, including the influence of Confucian familial values, perceptions of patient dignity, and challenges in talking about death. The findings of this study provide important insights into the role of cultural values in palliative care decision-making among Chinese families. These results may enrich palliative nursing practice by considering cultural aspects in designing care that is more sensitive and appropriate to the needs of patients and families.